Scientific programme

Outline programme

Full programme


Satellite symposia and workshops

Associated symposium, Friday 21 June
Muscle-bone interaction in Duchenne Muscular Dystrophy
Details and registration here

Foramen magnum stenosis in children with achondroplasia working group, Saturday 22 June
Pre-registration for observers required by 3 May - details here

Networking events, Saturday 22 June

New Investigator Workshop

Allied Health Professionals Workshop

Please tick the box on the registration form to reserve your place

New Investigator Workshop (concurrently with Allied Health Professionals Workshop, see below)

Saturday 22 June 2019, 10:00-12:00

How Did I Get Here?

Talks from Rachel Duckham (Melbourne, Australia) and Heike Hoyer-Kuhn (Cologne, Germany) describing their career progress to date including areas such as:

  • What challenges/problems have you faced, and how did you get past them?
  • How have your research interests changed throughout your career?
  • What were the key decisions or moments which impacted upon your career?
  • What advice would you give to new investigators?

Round table discussions

Participants will take part in 4 x 15-minute discussion sessions with a senior investigator (names to be confirmed).  The topics for discussion on each table are: Building Your Profile and Network, Disseminating Your Work, Funding Your Science (and Yourself!), Developing Your Skills. After 15 minutes, participants will move onto the next station.  Senior investigators are encouraged to let the new investigators lead the discussion,

Group discussion

To conclude the session, we will invite suggestions from attendees for future sessions, and for another new investigator initiatives within and outside of the biennial conferences.  This can include new investigator retreats, virtual conferences (egSkype/Twitter-based) and other opportunities for networking/maintaining contact between conferences. 

Allied Health Professionals Workshop  (concurrently with New Investigator Workshop, see above)

Saturday 22 June 2019, 10:00-12:00

The aim of the session is to provide a networking session to allied health professionals (nurses, physiotherapists, radiographers, occupational therapists etc) and to share insights about their roles within a metabolic bone service.  The programme for the session is as follows:

Management of children with severe osteogenesis imperfecta
Jas Sahota, Birmingham Women’s and Children’s Hospital, UK 

Patient experiences seen through “Stop Motion” animation
Kirandeep Basraka, Birmingham Women’s and Children’s Hospital, UK 

New treatment in XLH, case studies and results from a cohorted start to treatment
Ian Tucker, Bristol Royal Hospital for Children, UK 

Imaging in metabolic bone disease
Alistair Calder, Great Ormond Street Hospital, London UK 

From conception to the retailer: how to make your specialised equipment commercially available
Jill Massey, The Evelina London, UK 

Surgery and rehabilitation for children with X-linked hypophosphataemia
Gabriel Mindler, Medical University of Vienna  Austria 

The patient and parental perspective – XLH
Tenna Toft,  XLH-Patient Association, Denmark